ÐÇ¿ÕÊÓÆµ

Patient Information Forum

Woman in the audience of a large conference in a lecture hall stands with the microphone to ask her question

As well as the ÐÇ¿ÕÊÓÆµ working directly with Health Charites we are committed to membership of the Patient Information Forum.

The Patient Information Forum (PIF) is an independent organisation that represents more than 300 organisations across the ÐÇ¿ÕÊÓÆµ, voluntary, academic, freelance and commercial sectors. Their expert guidance on the production of high-quality health information supports an improved healthcare experience for patients and the public.

PIF help their members to provide high-quality, clearly communicated, evidence-based healthcare information. Their aim is to empower people to make informed decisions about their health and improve outcomes. Their philosophy is that health information is a therapy in its own right and should be accessible to all.

The ÐÇ¿ÕÊÓÆµ are members of the Patient Information Forum, which provide annual training for our staff and taster training for members together with newsletters and access to forums and expertise.

The ÐÇ¿ÕÊÓÆµ are also proud to have participate in the annual PIF TICK audit to be recognised as trusted providers of high quality health information.

Patients Handbook 2025 930X664

Working together: a handbook for industry and patient organisation partnerships 2025

A resource for patient organisations and companies to enable successful partnerships for patients.

Best practice guidance: Supporting patient organisations to report industry funding

The ÐÇ¿ÕÊÓÆµ Code of Practice places requirements on industry to publish annual lists of payments to patient organisations, and we endorse this approach. Currently, there is no similar requirement for those patient organisations in receipt of grants or funds from industry. In response, the ÐÇ¿ÕÊÓÆµ has put together some advice for local disclosure mechanisms, based on current practice among industry.

Disclosure Best Practice PO 2025 Spread 990X743

Last modified: 24 June 2025

Last reviewed: 24 June 2025